Walking a Fine Line

Colby went back to the cardiologist yesterday for a two week follow up. It looks like we are continuing to walk that very fine line, which is very hard for me! Dr. Liske did another echo to measure the pulmonary valve, and it looks like it is narrow enough but not too narrow. I know...it's very confusing! Basically, Colby is still getting too much blood flow to his lungs, but the valve is narrow enough to protect the lungs just enough to allow us to wait a little bit longer. Dr. Liske's plan is to wait as long as possible before doing any intervention to see if his body will create it's own perfect balance in preparation for the Glenn Surgery. The complicated part is that he wants to wait as long as possible before doing the Glenn (6 months old), because Colby has 2 Superior Vena Cavaes, which will basically require them to do 2 Glenn procedures on him at the same time. Our challenge is to get his body to balance out and stay balanced for the next 4 1/2 months. So, for now we are in a waiting game! I'm not a fan of the waiting game, but I guess I better learn to like it...it looks like we are going to be doing a lot of that with little Colby.

We will go back to the cardiologist again in two weeks for another follow-up. Next week, we will continue our weight and sats check at our pediatrician office. This week's weight check went great!! Last week, Colby weighed 7 lb 10 oz, and this week, he weighed 8 lbs. This is very encouraging to us. However, at our cardiologist's office, he showed a much slower weight gain on their scales. Very strange to me...Jason and I are still trying to figure this one out! Anyways, we will be trying yet another formula to fortify his milk. Hopefully, he will be able to tolerate it...once again, we will wait and see!

Thank you for all of your calls and emails to check on C0lby's appointment. I'm sorry I did not get to post info yesterday, but once we got home, things were busy as always!