Colby's first week at home after his Fontan definitely had its ups and downs. Days 1 and 2 were extremely difficult and exhausting, but by day 3, Colby was having a lot more good moments than bad. I have to admit that during days 1 and 2, I was scared to death that we would never see our little Colby's big personality again. He was just so uncomfortable, tired, and unhappy. We are so used to him being loud and lively that it was hard to see him the extreme opposite of that. When we started seeing his little smile, seeing him feel more like playing, and seeing him and Brody acting silly together again, we were all very excited and thankful to God!
As you can see from the first two pictures below, Colby watched a lot of movies through the week. He didn't feel like playing with anything except his little DVD player and the remote. Ah-Ah, his monkey, was always close by his side, and he wouldn't let me far from his sight either. He got a little spoiled to constant mommy and daddy time in the hospital, and he wasn't ready to give that up just yet. I don't know if you can tell in the pictures, but he has very tired eyes! This is because he was NOT sleeping well at all!! Jason and I have had several rough nights. We are not exactly sure what is causing the night waking, but we do have a few theories: he got used to me or Jason sleeping in the bed with him at the hospital, he is having bad dreams (who wouldn't after what he just went through!), or he is still having some pain. Whatever the reason, we are praying it passes soon. Jason and I are not great with being woken up in the middle of the night any more.
The night before this picture was taken, a funny (at least it's funny now) thing happened. We were up and down with Colby from about 11:30-1. We thought he was finally sleeping peacefully, but we were wrong! At 2:30, Jason wakes up thinking he is having a dream that he hears Colby. He turns over to see Colby sitting in the middle of our bed between us patting us both on the backs smiling and saying, "Wake up mommy, wake up daddy." It was no dream! This little monkey climbed out of his big bed with his Ah-Ah and "tanket," climbed down the stairs in the dark, and climbed up into our bed. I'm pretty sure that these things are probably on his list of restrictions, considering he just had open heart surgery! He is lucky that he didn't hurt himself! I took him right back to his bed, and he slept the rest of night. He will hopefully not be trying that again any time soon! 
This was Saturday, and it was actually the first day that Colby felt like getting up and moving around a lot. He and Brody were having a dance party. I love watching them dance! 
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