Wednesday, August 13, 2008

Light at the end of the Tunnel

We decided not to post any new pictures today b/c one of our biggest fears for Colby became a reality this morning.... Over the past 5 months we have tried to prepare ourselves for what he might have to endure during this process of healing. The doctors had warned us from the very start that it might be hard to see him hooked up to all of the machines in the NICU. We had prepared ourselves for the worst and fortunately most of those fears have not become a reality. Becca and I were talking the other night about some of the things he had been able to allude during his stay in the NICU. Among that list was an IV in his scalp (that is "head" for my slow friends). Well that fear became a reality this morning. He had done so well over the last 9 days with his IV ports especially since they were able to hook up most of his stuff last week through the main line in his umbilical cord. Well they removed that line on Saturday so ever since then they have been using std IV ports. Apparently a typical port is only good/ functional in a baby for 3 days so they have run out of hands and feet to start new IVs so today as a last resort they had to put an IV port in his head. Permitting he doesn't need any additional meds that should come out Thursday or Friday AM. Even though he had to get the "Unicorn" port today he has been able to avoid a pic line as well as many other things typical in the NICU. So we are thankful.

Now for the good news.... This port was put in so he could finish his antibiotics that he started on Sunday to fight off a potential infection. He will finish up that round of meds tomorrow. So hopefully he will not have to take any additional meds after Thursday. Other good things that happened today...... They stopped his anti-seizure medication today at noon. We had hoped he would be able to stop taking that medicine before he went home. They decided to discontinue that medicine after they got his EEG report back this morning and were able to conclude that there were no signs of seizure activity and the brain appeared to be responding positively since his last seizure episode last week. They also told us that his body temperature appears to be stable. He has been off the warming bed since mid-day yesterday..... More progress.

Oh yeah Colby has done really well in the feeding arena as well. Might not surprise those that know his big brother Brody. Colby has gained just over a pound in the last week, which is really good for a NICU heart baby. I must credit Becca with this success b/c she has been diligent and patient in feeding him. Yes, she is the best mommy in town.

Conclusion of today's activity: no more positive cultures for infection, discontinue seizure medicine, and body temperature appears to be stabilizing.... These are all pieces to the "going home" puzzle. Tentatively the doctors are wanting to discharge Colby on Friday. Yeah!!!!!

Despite the Unicorn IV in his head, today was filled with great news and a lot of progress.
Colby's demeanor is a lot like Brody's calm, laid back, and happy. All of his nurses keep talking about how happy he acts and how laid back his temperament is. I guess he gets that from him awesome mommy.

We are so happy to see the light at the end of the tunnel. We are trying not to get our hopes up too much but at the same time we are pretty excited about the thought of having both our little boys at home together and it seems like it might be sooner rather than later. We will continue to pray that he doesn't have anymore setbacks yet we pray that he is stable and healthy when they do release him into our care. Apparently the doctors are judging our parenting skills on Becca's aptitude rather than mine otherwise Colby would be 18 before they released him.

We can't thank each of you enough for your diligence in prayer and support and we can not give enough credit to the healing hands of God. Despite the emotional roller coaster Becca and I have been on for the past 10 days there has never been a moment in which we felt alone or did not feel the loving touch of God.

11 comments:

Anonymous said...

Good stuff.

Anonymous said...

This is great, positive news!!! Fingers crossed that it'll just get better as the hours pass. Make sure you are spoiling that wife of yours Jason, it sure sounds like she deserves it!
Lasharne

Anonymous said...

That is awesome news, I am so glad that he is responding so well now and that the light at the end of the tunnel is getting closer and closer. We can not wait to see him in person and love on him and you guys as well. Becca you are an awesome mom and Colby and Brody are both very blessed that God chose you to be their mom. And Jason you know you are very lucky to have her in your life!!!

Rachel

Lisa said...

Thank you Jesus for this amazing miracle. Please continue to let the light get brighter for Jason and Becca so they can take their sweet little baby boy home!
Praying for you! Lisa B.

Anonymous said...

Great news! I'm sure you can't wait for everyone to be together. We'll continue to keep you in our prayers.

Monica Sartain

Anonymous said...

This is terrific news!
Thank you so much for sharing the events surrounding Colby. It makes us feel like we are right there with you.
We love you and we are eager for Colby to come home.
We are praying for God to keep all of you in his hands.

Sheila Goostree

Anonymous said...

Wow~such great news!!! I'm sure it is hard to see little Colby with the IV in his head, however it will be worth seeing him like this now, if it makes him better in the long run. God is watching over your family and you are in great hands! Thanks for keeping so many of us updated! Still praying ...

Love,
Melissa and Clay

Anonymous said...

This is GREAT news!! Jason and Becca I am sure you can not wait to have both boys at home together. It is going to be great to have two boys that close in age growing up together. I will continue to keep you in our prayers.

Amy Camp

Anonymous said...

this is wonderful news! he has been moving in the right direction and very encouraging to be weaned off phenobarb and to have temp stability. jamie and i continue to look forward to seeing him home. sorry that i haven't come by this week ... the sniffles have persisted and i didn't want to expose him to any germs. i did sneak by last night (i was at the hospital late) but you guys weren't here so i peaked in from outside his room. keep posting the pictures -- i guess we will all have to wait for the scalp IV to come out. looking forward to seeing you guys soon i hope!
XOXO
Catherine.

Heather said...

yeah!!!this is awesome, i am so excited for you all. prayers are still coming your way & will continue after you get home. my niece had the IV in the scapl thing & the nurses said it was less painful & better because they couldn't reach it to knock it out....so take pictures. he'll appreciate how much of a trooper he was when he is older. Praise God he's doing better! get some sleep, you'll need it after he's home :-)

heather

Anonymous said...

We are so excited for the good news with Colby's progress. We are continuing to pray for you guys and this roller coaster ride - i'm sure it changes day to day and moment to moment.