Colby had a pretty good day yesterday. He continued to maintain his body temperature on his own, no signs of any seizures, and he had his last dose of antibiotics for that possible infection. We are so glad that these other non-related heart issues have finally worked themselves out. Plus, since he didn't need any more antibiotics, they took the IV out of his head and gave him a bath! He is looking so good this morning!!
Yesterday also had some hard times for me and Jason, however. After almost 2 weeks of worrying about everything else, we have not had time to even think about the fact that he is a heart baby. He decided to remind us yesterday. His chest X-ray showed some fluid around his lungs, which is common with his heart defects. Basically, this makes it harder for him to breathe. I noticed it when I was trying to nurse him. After two days of great nursing, he just physically couldn't do it. So, we tried to give him a bottle, since it is so much easier for babies to take bottles (nursing is hard work for the babies!). He was able to drink it, but I could tell it was much harder for him. He would drink for a few seconds, then stop and take several fast breaths (like he is panting), and then he would drink a little more. I have to admit it is so very difficult for us to see him like this, even though we knew that this would probably happen. To help reduce some of the fluid in his lungs, the cardiologists prescribed Lasix (a diuretic) twice a day. Fortunately, this is a medicine that we can give him orally at home. It will hopefully help with his breathing, especially when he is trying to eat!
The cardiologists also informed us that his last echo, which was done on Wednesday, showed that he has not developed any stenosis. They were hoping for some evidence of this, because this is what will close his VSD (hole in his heart) a little to the right size. So, we are still at risk for needing that first surgery...the band. Jason and I are both just hoping that we can have him at home for a few weeks before this will be necessary. It would be nice if it weren't necessary at all, but we will see.
We are sitting here with Colby now waiting for the doctors to do their rounds and hopefully give us the final orders for discharge. I'm still not getting too excited just yet. We have learned anything can happen!!!
We will post again later, and hopefully it will be with pictures of our whole family of 4 relaxing at home!!!
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4 comments:
Praying that today brings the good news of getting to go home! Lisa
love you guys! Just sitting down to pray right now. The other day I was reading in Psalm 116 and the first two verses are: "I love the Lord, because He hears my voice and my supplications. Because He has inclined His ear to me, therefore I shall call upon Him as long as live." I thought of you guys and thought how cool that we serve a God who hears us when we talk to Him and hears us when we cry. We don't have to just ramble off our worries and hope that someone hears - we can KNOW with full confidence that He hears and that He has compassion, that He is near, and ready to answer! The hard part is we don't know what His answers will be and that is where we have to trust that He is GOOD (Psalm 86:10) and promised plans to prosper us not to harm us, plans to give us hope and a future (Jeremiah 29:11-13).
Praying through His promises for you guys and for you to trust in His goodness and sovereignty with each moment. love you!
Another day more good news. While you know there are always those days that bring news that you could do with out, it's steady days like these that help balance those. Your strength is amazing during all of this and God is with you.
Good luck! It's so exciting on discharge day...He'll do wonderful at home. Maddie seemed to really "take off" after being home and out of the noisy, "hustle and bustle" of the hospital. Praying for a good day today for Colby and hopefully he'll have his first car ride, HOME! Yeah!
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